But you look fine!


I think that it is hard for me sometimes, when people see me and think that I am fine and do not realize that the problems are inside my body. It is very frustraing to have to explain myself to people — like–  today I am in a lot of pain. My skin hurts. My skin feels like I have thousands of pins and needles attacking the inside of my abdomen amd back area and my legs and feet are constantly tingling all day. Sometimes I get these electric bolts that shoot across my face or my leg or from my left ear to the middle of my face. These things change my mood. It is hard not to take my moodiness on others.

I meet people and they say I thought you have MS? You look fine to me! I have also had people that I have known tell others that I use my MS as an excuse for my behavior or the way I am feeling. Interesting comment since those people really have no clue to what having MS is like. I want to scream at them and say do you know what it is like not to be able to brush your teeth because your right arm will not cooperate with your mouth and the toothbrush? Do you have any idea that sometimes you have to depend on someone to help make you a sandwich because your right side is not functioning at all?

So now when people tell me I look fine, instead of getting upset and going through all the feelings of despair of having to explain myself, now I raise my arms up in joyful glee saying “YES!” I look fine because everything is working today. My arms, legs, body is all functioning A-OK! That is a good thing. I am having a great day!

Comments

2 responses to “But you look fine!”

  1. Katie

    I have to admit I had no clue what MS was until I was diagnosed last spring. When I told my co-worker about my MS, she said, “at least, I can buy a fancy wheelchair”. I did not take it personally because I knew she’s ignorant as I was.

    After learning so much about MS, I realized that not everyone will end up in a wheelchair. (25%) I am grateful for this blog so we can all learn together what MS is all about.

  2. Wow, I’m impressed that you did not get upset at that comment. I think I might have at first but then again, you are correct – people have no clue and can be ignorant about a disease like this. I am scared I will be in a wheelchair some day. I am hoping that will never happen. I must think positive, be strong, mind over matter!

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