Tag: Life

  • Changes and Growth

    There have been some good changes in the last few months here in my personal life. Moving was the biggest change. My sister, Karen and I moved to a nice and a little better designed handicap accessible apartment. The biggest joy is being near the salty marshes. We can go down to the docks and watch the water in hopes of seeing dolphins. Neither one of us has seen any yet. The second biggest change was the bathroom issue at her previous apartment. I can move and use the toilet safer in the new place because the grab bars are where they need to be. Having the grab bars is a huge stress reliever for me as I got hurt a few times in the other place. The bathroom unfortunately has a bathtub, so I had to request my doctor to prescribe an occupational therapist to come show me how to transfer from the power wheelchair to the shower seat. A work in progress. The kitchen has some issues, but that is another post.

    First, I wanted to share my picture of the “Rattlesnake Plant” that I bought in Michigan before the move. The plant was dying at the time of the move, but now it has transformed into a beautiful vibrant, spotty green, animal friendly plant. This plant is my reminder and I see it everyday in the living room that even though things are going in everyday life, the spots are a reminder to work on myself and to remind me that people can be “rattlesnakes” and spotty. Rattlesnakes have attitudes, mean behavorial issues, and for me the changes in my life are the green parts “joys and calming” things that I work on within me and this journey. The brown leaves on the plant are dead things that just did not work in my circle that I have created with my well being.

    Now for the things I have been dealing with and it explains the plant paragraph. Thinking about the changes that happened during the transitioning to a better place I forgot what a pain it is to live with a very self-centered and ungrateful human being. Some of my trauma returned from situations I used to be in another chapter of my life. I relocated to another state to live with my sister because I needed some help and the current crap going on in this world has me very concerned about my life and needs. In the prior apartment she was living at, there used to be a 3rd and 4th person (referenced IT) in this living equation. The unfriendliness that was portrayed from day one of my arrival, petty issues, eye-rolling drama, crappy attitudes, mean talking and sneaky decisions that I saw just did not sit very well with me. For me, it was narcissism at its finest. I felt utterly in despair and truly felt my move was another wrong decision. Then when I saw the things that upset and often angered my sister from this oppressive and self-opinionated IT during the 9 months living with these extremely nerve wracking and difficult ITs, the final stab just infuriated me. After putting us through a lot of turmoil, doubt, and walking on eggshells along with the sneaky and narcissistic behavior about us moving to a better accessible place for me (please remember IT told my sister I needed to move in with them), IT#1 and IT#2 made it uncomfortable causing a lot of conflict and nerve-wracking feelings with my sister and I about moving to an accessible place. The final disgusting act was on the weekend of the move, my sister told me “IT” was not moving with us. This was planned secretly with IT all along. I am so pissed off because this was so not necessary.

    Now, I have been thinking a lot about anger and forgivness during these last 2 months of peace that it is possible God was intervening because things now are so much pleasant. There is no narcissistic, stomping around, mopey, walking or wheeling on eggshells, feelings of worry offending IT. It was meant to be. However, did my attitude within me cause some nasty MS effects in my body. Yes, I believe God was trying to say something. There are consquences for our thoughts, feelings of anger, actually despising people in my circle of life, I am having some major exacerbations caused by the stress and hatard I allowed myself to feel.

    I honestly thought I would not experience this type of crap again in this stage of my life having grown up with it being physically, mentally, and verbally abused by 3 family members and with two incredibly significant abusive relationships that has changed me in a way that caused serious life changes. One devastating change was being diagnosed with multiple sclerosis and my thirty plus year journey with chronic nerve pain, fatigue, and having to return to my home state with uncertainty and despair during my mother’s cancer diagnosis. The last abusive thing I suffered from the trauma decreased mobility with my legs drastically and I have been in a wheelchair since 2020. It is now 4 years. The decline with my legs and the trauma-related was confirmed by three neurologists and my PCP in Michigan and here in SC. I am praying they are wrong, and I have hope and faith that I will walk again. This will be another or several posts to write about I believe. Stay tuned.

  • Reality

    Today, I had to get a few things from the store and I wanted to test my scooter because I had it repaired. I took a shower the night before so I would not be exhausted when I went out.  I was able to tackle one store, but the struggle started. I had a hard time with my legs trying to get in the car. The second store, I just had my friend get the three things I needed, I stayed in the car trying to get my left dead-weight leg working. The third store I was able to get out and get things I needed, but the legs were still not cooperative. BTW my scooter is still not right. Argghhh!!

    Then, the thinking started. I thought about what I missed. The simple task of just going to the grocery store to get a few things, by myself. Just getting out and doing stuff , those days are over. I have to go with someone. I have to plan ahead, before I can even schedule something. I have to make sure I don’t run out of things because I can’t just get up and go. Reality has set in, I’m in a very different place now in my life. I have to accept it and just realize this is my reality. My MS will not make me bitter, jealous, and want things I can’t have. Bound and determined not to let my MS kick my butt!

  • Taking Life for Granted

    I think we take life for granted. I know I did. Years of seeing people in wheelchairs, senior citizens struggling to get food from their scooters or trying to find a handicap parking spot, watching people become agitated waving at handicap people impatiently out of the way, because their time has been interrupted by someone struggling to cross the sidewalk or walkways, and even family, partners and friends change.

    Today, I’m in this very same situation. I cannot go far without help. I am now at the mercy of others to see if I can get a ride, go food shopping, get a couple of loads of laundry done, and the opportunity just to get out into a different environment. I must schedule, plan, ask, pay, push my pride, dignity, independence aside, and learn patience to wait just to get the simple everyday things done and the things we’ve taken for granted.

    If I had the chance to go back and live my life over, things that happened in the last twenty-five years would definitely be planned differently.

  • Daily Struggles

    Typical day: the impossibles every moment of my day and yet somehow as the sun goes down, I always make it. When laying in my recliner, feeling beat up, worn out, battered and bruised, taking a minute to look back over the day, I realize that the my inner warrior kicked some major MS butt. 💪I pushed through my day with my legs and hands cramping up, tingling, hot/cold sensations while my head is buzzing, spinning and feeling lopsided. I feel like I’m on a high speed roller coaster ride. Oh, and then trying to speed dash with one leg dragging sometimes leg locking to the bathroom…well, almost. But I’m so thankful it’s not a major mess and I have a change of clothes in the bathroom, and no one even noticed that before I was wearing a pair of black shorts instead of the blue jean ones I’m wearing now.

    As the day progresses I keep trying to sign, type, study, work, think, feed the cats, cook, but struggle making mistake after mistake. It takes great skill to stumble over words then turn them into something that makes sense. I have gotten pretty good at word replacement and hand gestures signing you know, you know. I’ve become an expert in judging if I can grab the next available piece of furniture, the wall, towel bar, or counter so I don’t fall.
  • You Are Allowed

    Today I saw this and gave myself permission to feel this way!

    Allowed