Can Food Be An Issue Or Not?

After a week and a half of taking care of a fellow MS friend, I cannot help but wonder if MS attacks are caused by different foods. BY NO MEANS, AM I A DOCTOR!! AND THIS IS NOT A CURE FOR MS AND ALWAYS CHECK WITH YOUR DOCTOR ABOUT THINGS YOU WANT TO TRY, but it seems to be a pattern that food can play key roles in how we feel everyday. After having our 2nd group meeting and speaking with the people who showed up, they displayed the same opinions as I do. Everyone has “DIFFERENT” opinions and feelings about food.

With Lesa, we noticed that she had more problems with certain foods such as any type of dairy product, pork, yeast, and possibly eggs and gluten. This is extremely interesting and an interesting observation to me, since most of the healthy eating books about MS explain that these food allergies wreak the body’s abilities to walk and function normally.

Myra indicated in the meeting that her issues were related to anything that has sugar in it. Fruit is a natural sugar her doctor and she feels that some fruits are OK, but not to overdo it. Myra follows a very strict diet, she eat only organic fruits, vegetables, poultry, eggs, and nuts. She showed surprise when the book “The MS Recovery Diet” suggested that eggs might cause attacks because she eats eggs 3 times a week, this is written on the Direct-MS website

www.direct-ms.org/recommendations.html 

This website explains this same theory that these types of foods dairy, eggs, animal fats, sugars, gluten are suggested that have the potential to cause autoimmune reactions. MS is an autoimmune disease, and these foods may cause problems with certain people.  This does not mean Myra cannot eat eggs, it just means it is something she should keep track of and see if there is a problem. Every person has different attacks with different foods. Some suffer the same signs and with some there are no food allergies at all. 

 I noticed with my body, I cannot eat beef, peanuts, and some pork products, I become extremely tired and cannot function the next couple of days, I am very listless and feel like CRAP! Dairy (I mean just organic milk), eggs do not seem to bother me, although that is the number 1 problem with most people. I do not eat a lot of sugar anyway because I have Type II Diabetes – which was caused from years of Predisone and Soluable Medisol and of course the number one problem being overweight. Losing weight for me is a work in progress. Sometimes I think that losing weight is such a joke for me because it is so hard for me to exercise. My legs become numb and all tingling like they are going to fall asleep making it so painful to exercise.

I shared some great insights from information that I have collected from various book sources and from the health food stores. I had a friend who is a health food nut and she gave me one of her little brochures that she gets from her health food store and I found a very interesting article about the herb Cilantro. Cilantro to me tastes like soap. It is a very strong-tasting herb and it is used in mostly some Asian soups and Mexican dishes like salsa. Ok, there is a big theory floating out there about mercury and silver fillings that we have in our mouths for cavities. The silver that is used to fill cavaties causes our bodies to have dangerous toxins that cause MS an exacerbation. AGAIN, I AM NOT A DOCTOR BY ANY MEANS THESE ARE JUST OBSERVATIONS I HAVE LEARNED FROM OTHER PEOPLE.  By removing these silver fillings and replacing them with porcelain products the MS attacks were less to almost non-existent to some. Lesa has about 7 or 8 fillings in her mouth and one broke six months ago, and she told me her MS attacks started around that time frame. Vicky said that her mother who has MS had the same problem until her fillings were removed and there was a huge difference in the way her mom felt. SO….. interesting little tidbit of information. Anyway, the herb Cilantro helps remove toxins caused from aluminum, lead, mercury, silver etc., from the body. There is a Cilantro pesto sauce recipe on my PK Cakes website if you are interested in this sort of theory.

Learning about how food affects the body is extremely interesting to me. I enjoy learning about all kinds of food and how they affect the way we feel everyday. Very motivated  now to keep on eating healthy and promoting healthier eating habits.  It is better to be safe than to keep our eating style that can affect our recovery. I have to learn to accept that I have many limitations to eating and doing normal activities everyday and those things are very hard for me to do. It is hard to slow down when I know there is so much I  want and need to do. I have to stop and listen to what is going on in my body because I suffer when I am Not resting, Eating a well-balanced diet, Exercising (when I can), Getting enough sunshine for vitamin D (one of the causes of MS, the lack of), and Respecting my body. These are the 5 things I have to implement in my life. I do believe that if I follow those things, I will have better control of my MS situations that pop up everyday.

Myra’s Testimonial

Hi, Pam! Yes, the support group was great! I couldn’t believe that I talked a lot about it to my husband yesterday and last Sat.  I felt so happy.  A lot of info is really worth it! Thank you! 🙂  yesterday I didn’t feel good, but not bad.  I felt lightheaded and a part of Lhermitte’s Sign in the morning plus fatigue.  After a nap,  I felt better, but I got a headache then.  I thought I would have a bad day due to Lhermitte’s Sign today, but not.  My legs are getting heavy due to motion sickness or sugar or both.  I will see my dr tmw and ask some questions.  Myra

This is so great! I wasn’t sure the support group was going to work, but when I got Myra’s e-mail tonight I was thrilled to death. I am so happy that Myra is happy about the group support. It is wonderful that we can share our stories and I encourage everyone to comment on my blog website. it is so important that we get our stories out there, because who knows we can help someone else.  Myra’s testimonial has renewed my faith in my support group and sharing stories with everyone. I was not sure if I was getting anywhere but it looks like I am. It’s a great feeling!

More about Lhermitte’s Sign, check out the link on the right side of my blog. Click on the link and you will see information come up about this – pretty interesting reading. There is actually a name for these pain in the neck tingling feelings that I have everyday and suffer from it and do not get any sleep because of it.  It would be so great to have one day of no tingling – how cool would that be?!?!

MS Support Group – 2nd Meeting 09-13-08

KUDOS!!! to Vicky for providing transportation so Myra could come and be a part of the meeting. Lori came because she wanted to visit with Lesa which is awesome. The more positive influence the better.
Myra Vicky Lori Lesa 09-13-08

Myra Vicky Lori Lesa 09-13-08

Today we had our 2nd MS support group meeting here in my home. The reason the meeting was in my home is because Lesa is staying her to get better from her MS attacks she has been suffering for a few months. We are working on changing her diet and so far we are finding some foods are causing problems for her. We are starting to see a pattern which means what we are doing is helping Lesa realize that food is a huge key into staying healthy and MS attack free.

The topic of today’s meeting was about what kind of foods people who have MS should eat. One of the things is a low fat diet. Six things should be eliminated from the diet is – Gluten, Dairy and Animal Fat, Eggs, Legumes – such as peanuts, soy and Sugar.

Today everyone bought a dish to share. Healthy healthy food. WOW!

Healthy Food
Healthy Food

Thanks to Myra, she brought healthy organic veggies to make a salad and hard boiled eggs, Vicky and Lori brought organic fruit and rice pudding. I made an excellent fresh tomato dressing and avocado cilantro dressing to go over the salad and I made hummus and served with celery, carrots and organic rice soy crackers – which we later figured out that the crackers had sugar in them. CRAP! Trader Joe’s sells the rice crackers without the sugar so I will get those next time.

The food was so healthy and organic. I loved what we had today. It was so cool because people were asking me for things that were organic and healthy and I had everything. Kewl Beans! The food in my house is almost all organic, dairy and gluten free, so it is work in progress. I do miss the bread, cheese, and dairy products though. One negative thing today was that Lesa started to have a flare-up. We all figured it out that it had to do with eggs. So now she knows as of today she cannot have anything with dairy or eggs. I explained the importance of a food journal. Myra shared hers with the group, and she says that she keeps track of everything she eats. Lesa realized that keeping a journal is so important.
I copied some information out of the book “The MS Recovery Diet” by Ann D Saywer and Judith Bachrach – to share with the group about different foods we should watch out for with the MS.  The one thing I talked about was that we cannot eat a typical American diet, because our MS bodies cannot handle it. The number one problem in today’s society is there are a lot of people who are sick all the time because they do not understand the importance of eating healthy organic food.
Caffeine and sugar is very addictive. If you drink coffee, some teas, cola soft drinks and chocolate – wean off these things slowly to prevent having a caffeine withdrawal and suffering from severe headaches. Learning to use subsitutes for baking and cooking such as spelt, potato and rice flour instead of flour. These types of flours are pretty much gluten free. Substitute a rice or nut milk instead of cow milk for baking, recipes will have to be tweaked for things to taste good. Instead of using sugar use Stevia – this is a natural sweet plant. Using olive oil, sunflower seed oil and canola oil instead of vegetable oil and shortenings because these are the healthier saturated fat oils.
Patience is important. It takes time to see the changes in our bodies and since MS is a disease that has no cure, we have time to make the proper adjustments to our diets so that we can live MS attack free lives. Wouldn’t that be an awesome thing!
What a productive day!

Helping someone who is having an MS attack

Myra and Pam 9-10-08

Lesa and Pam 9-10-08

This picture was taken today. Lesa has come to stay with me for a little while. She arrived at my home with Vicky one of her friends on Saturday 9-6-08 barely able to walk and was really stressed out. I think that being stressed out and food diet had  a lot to do with her MS attack. Today is Wednesday, and Lesa is walking and signing so much better. I thought it was the coolest thing to see her walk up 5 steps today without using her hands to move her legs up each step. Every day is a good day.

I changed Lesa’s diet completely. Sunday I did not serve anything with Gluten or Dairy in it basically it was not planned, just happened that way. On Monday, I served breakfast, gave Lesa gluten free granola cereal mix with organic skim milk and when she was done eating, she became very stiff and was not walking hardly at all. I thought oh boy. She said that she felt her legs were swollen but they did not look swollen. I told Lesa that I think she is having an allergy reaction to dairy and that she needed to stop drinking and eating anything with dairy in it.

Today I served breakfast, gluten free granola cereal with rice milk and Lesa was fine. I eliminated all dairy from her diet and she is eating no gluten. I noticed such a big difference in her already. I still believe that food allergies can cause MS attacks. As I have said this before, it is so important to keep a journal of everything that you eat, and how you are feeling by the end of the day. Very crucial.

Lesa admitted to me that she does eat a very poor junk-food diet. She realizes now that staying with me for a little while, a big difference in the way she is feeling. I think that eliminating stress and the wrong foods can make all the difference in the world.

Another thing I told her that she needs to think about herself. No more worrying about what other people are doing and what other people think. I think it is so important to eliminate all the negativity and stress and this helps release tension and makes the body relax. When someone is so stressed out it causes the body to tense up and things do not function right. I think she is realizing this now.

Hopefully Lesa will be on the path to healing and by staying with me for a couple of weeks might just change things. I am learning about this myself. I think helping her is helping me to realize how important taking care of yourself is especially when you have MS.

Diet and does it affect my MS

I often wonder if diet is a huge key into preventing MS attacks. The more research that I do about MS and diet, I am beginning to think that food allergies have a lot to do with how the body performs. One of the things I have been doing heavy research on is gluten free foods. I am almost convinced that gluten is one of the many problems that causes MS to react so badily in our bodies. I have eaten less gluten foods for a couple of weeks now and have noticed a huge improvement in the tingling of my legs and feet. Today I went off the diet a little bit and had coffee with cream and ate a piece of cake, the tingling in my hands, feet and legs is running 100 miles an hour. The way I am feeling right now has me convinced that I need to quit drinking coffee and eating food with gluten and sugar in them.

When I drank rice milk or almond milk I did not feel exhausted as I do today. I had cream in my coffee, I am becoming a little depressed because I do love milk, cream and cheese, these are a few of my favorite things. I am thinking I need to give these things up to feel so much better. I would rather feel great than eat these things I am thinking.

I am not a fruit person. I will eat bananas and apples if I must, but I would rather eat vegetables. I love vegetables. I can eat any vegetable except brussel sprouts sauted in onions, garlic and olive oil. I am thinking I should try and experiment and see if eating vegetables and grains that do not contain gluten such as Quiona will change the way I feel in the next few weeks.

I think it is so important to keep a food and mood journal because I know I cannot remember every single detail of my life everyday. I forget things all the time. Keeping a food journal will help decide if certain foods cause flareups with the MS and you will know in time what foods you can and cannot eat.

My goal is to eliminate gluten – cold turkey – pretend that I have a gluten allergy and must stop eating all forms of gluten and then work my way to dairy and sugar products. I think at this point of time in my life I am 44 years old and it is time I started working hard to take care of myself. It is crucial.

My motto right now is “it is my life, and it is in my hands. I must make the changes to control and improve my situation right now”.