It is no secret that I have been struggling with my medications for the MS as suggested and prescribed to me by my neurologist. Also, I am struggling with my food choices, but after today’s self-research I may have changed this mindset. I have been taking the medication Kesimpta through injections since August 2022. This decision did not come freely or easily to me. I am not fond of medicine because I think medicine can do more harm and hurt a person’s body. I went through extensive genetic testing to rule out some of the side effects the Kesimpta injections may have. One symptom is cancer. Ocrevus weakens the heart. My mother died from Salivary Gland cancer and my father died from an aneurysm of his main aorta in his heart. After serious thinking, genetic testing, and research, I went ahead and decided to try the Kesimpta medicine. The medicine caused me a lot of issues that ranged from massive migraines and constant nausea with no break or relief for one year. Other things I noticed were moodiness, extreme fatigue, and various pain in different areas of my body. My neurologist was not sympathetic and said, “the past medical history of your medical chart shows that you are prone to migraines and the nausea with Kesimpta is not common. Even after meeting with the MS team, nothing was suggested like meds to help with the side effects, an MRI to rule out a brain tumor, or clots that could lead to a stroke after 6 months of continuous migraines and nausea. My concerns about migraines every day did not faze the neuro team at all. Because I mentioned that I had migraines years ago, the nurse practitioner made sure to tell me, “You said you experience migraines anyway”. Yes, years ago, and not very often, thinking what an asshole! Now it’s every day.

I met with my neuro team recently for the next 6-month checkup which now is the year anniversary of doing Kesimpta. I told the NP I am stopping the meds. The NP asked if I was willing to try different meds. I asked what kind of meds I should try, and it was suggested that I should try 2 other oral medications to help prolong the progression of the MS. One was called Aubagio and the other was called Vumerity. I did some research on the side effects and found this: Oh, I loved this comment, NOT, NP said “you MAY stop taking Kesimpta”. I’m like really? I may? Again, thinking, blow it out your ASS! I stopped myself and did not order any more in July. So, here are the side effects of the 2 meds suggested.

I have liver issues from the prior drug Avonex, that damaged my liver years ago. I have neuropathy from MS and diabetes already. The immune system is compromised already, why make it worse?

This bothers me a lot. To suggest these meds knowing I have high liver enzymes to begin with and can worsen. I DO NOT GET THIS LOGIC!

How many MSer’s are lied to and brushed aside by their neurologists and the team? I have lost all faith in the medical system. I have come to the conclusion, neurologists who do not have Multiple Sclerosis CANNOT understand or figure out how to help, ease, and work with a person who has an uncurable neurological disease. It is all about the money and western medicine philosophy. When medicine is not accepted by a patient, they stop working with you and move on to the next prisoner of Multiple Sclerosis.