Yesterday’s neuro visit was not what I expected. I never got the chance to meet the neurologist, just the nurse practitioner. I felt a little perturbed because I would have preferred to meet the “referred” neurologist who was recommended by my prior neurologist that can’t work with me. It is important, especially for the first time we meet. Still maintaining positive thoughts for the visit.

Updates are because of the everyday migraines and bouts of nausea it was suggested to try to stop the Kesimpta for one month to see if that fixed the issue. If it does stop the side effects, then I must decide if want to continue Kesimpta or stop completely. If I stop, I was told that’s it. There’s no other thing to try. It was very disheartening for me when I was told that’s it. After 30 years, there is STILL nothing.

I was told about trying sleep clinics, participating in a clinical trial for cannabis medicine, and see a psychologist for my problems with the pain, sleeping etc. I had to have labs done to check if there were issues with the 5 months of taking Kesimpta.

My number to be called for labs. “58” 5+8=13. (Remember yesterday’s post, I mentioned Lucky 13 because of my dad? Hmm wasn’t a great lucky 13). Geez, ten vials of blood needed. Guess I had plenty, no fainting here. I’m a toughie.

I need to process these answers and recommendations. Came home from the longest slow, bumpy, jerky, rough and nauseous bus ride and just basically shut down. Today is another day. We will see.