To someone who wanted me to describe my MS. l thought that was an interesting comment. Let me try to write a visual picture.

Picture your body inside a thick puff filled full body snowsuit with pins embedded inside the puffiness poking at your skin every time you move or touch anything, and your torso is being hugged so tightly you cannot take a breath without gasping in pain.

Your spine crevices are filled with water balloons that decrease and increase with every bit of movement made. Sometimes you feel so full from eating so much food that your chest throbs.

Picture your feet in big heavy snow boots and you are trying to walk in 4 feet high snow banks with someone holding your feet down and you feel that excruciating pain when you walk that feels like your feet have fallen asleep.

Picture your fingers intertwined with rubber bands and you’re trying to cut food, putting on clothes, brushing your teeth and hair, type and your fingers are wound so tight with rubber bunds that you can’t get the fingers to hold, open, grasp, pull without pain shooting you your arm to your brain and zapping it with an electric shock like you touched a live electric wire or got jolted with static electricity.

Imagine laying down quietly watching tv and someone shoves an electric wire in your ear and electric shocks shoot across your face and there is nothing you can’t do to stop it.

Picture your skin always feeling like a bad sunburn that never goes away.

Picture trying to walk and your feet stay stuck to the floor like you stepped in rubber stringy cement glue and your legs stay straight and won’t bend and your body leans forward because your legs do not catch up to the movement.

I have more, but I’m just depressing myself now. 🙃

Here’s the best part, I’ve had a neurologist say that with MS there is no pain. I’ve had doctors stare at me with blank expressions on their face like I’m nuts or something. Then prescribe these tests that they stick needles in your skin and turn on electric volts to see where there is nerve issues on top of the pain you feel everyday. The kind that has sweat running down your back and your deodorant fails to keep your arm pits dry. I’ve had people compare their pain like mine and trust me no ones pain should be compared. Each person has their own hell.