There are different types of Multiple Sclerosis. I went for years not knowing which type I am. People often ask me what type am I? For me, it was not a priority to know. There is no cure and I always thought, ok then.

Now, through my Multiple Sclerosis team, I found out that I was relapsing-remitting MS for years, — about 80% — eventually I’ve moved up the ladder and I’m secondary progressive MS (SPMS). The relapses and remissions that used to come and go change into symptoms that steadily get worse. The shift typically begins 15 to 20 years after you’re first diagnosed with MS. I’m the (SPMS), I’m the (SPMS), I’m the (SPMS) … 🤔

I’m not relieved, this I do know. The diagnosis, I don’t feel it helps me with anything at all. To me, Multiple Sclerosis is debilitating and it changes your life, goals, relationships with family, friends, and relationships. To get services, accommodations, just simple daily stuff that people “do” take for granted remains the same. Trying to understand why it’s so important to some. #mymsandme