Tales of my Chronic DiseAsed Life: a few days ago someone told me to hang in there, don’t give up, be patient we all have problems. I had to smile, nod very politely, be nice and show understanding where this person was coming from and agree. Do people really get it?

I miss my life – going to bookstores, going to Ann Arbor to my favorite places, visiting and browsing in art stores, antiquing, browsing vintage markets, garage sales scrounging, decorating my home, cleaning my home my way, folding clean laundry, organizing things my way, being in a relationship, going out to eat, going on a trip, driving, dating, getting together with friends for art stuff, coffee and dessert, book clubs, holding a book, sleeping in a bed, cooking new recipes, entertaining, taking a shower, vacations, living in Fla, earning a paycheck, earning a good salary, being disease free, my mobility in my hands and legs, typing 110 – 120 words a minute, not dropping things, being fatigue free, not being on government SSDI, better health insurance for copay assistance, dancing, the loss of my hearing due to the MS, riding my bike for miles and miles, having perfect balance, not having brain fog and cognitive crap, not having to depend on people to do stuff, drinking Mojitos, no food restrictions, the list goes on…