From one of the health talks related to MS. my reply:

Being asked, “what is the worst thing about having multiple sclerosis”.

This is a disease with multiple side effects that affects every aspect of living. To continuously be asked questions that have no change to a disease with no cure, is super annoying. Being told there is no pain in MS, being offered drugs to shut us up about the disease, neurologists that just gives up on you with no followup appts, finding out equipment and transportation costs a gazillion dollars and on being social security income that can’t pay for it, being denied SocSec because the government does not recognize MS as a debilitating disease, people in the healthcare profession telling you what they think you need instead of listening to what we need, shall I go on?

How about doing this instead – here are some great resources for therapy, better MS navigators, MS Social Workers that specialize in providing resources, better meds, caretakers, neurologists who do help along with how to get insurance approvals for meds, therapy, help at home, therapy for pain, without being told NO all the time? Bound and determined not to let senseless questions kick my MS butt 💪🧡💪