Reflections of my Chronic Disease life: I haven’t written in a while about stuff related to the MS, There’s a lot going on that has just exhausted me to the point, I want to give up.

Before I start my rant, I’ve signed up to do the MS Walk on May 4th in Wyandotte Michigan. I will be there and will scoot 🛵💨💨 . It is a 1 or 3-mile walk, consider joining Team Inspiration to raise $$ for this disease that just destroys lives. There is no cure and we need one. If you cannot come, consider donating. Staying Strong 💪🧡💪

https://www.facebook.com/donate/567108417125723/10216269307338919/

What’s been going on:

My neurologist has prescribed medicine that costs roughly $65,000 a year. My copay is like roughly $1600 a month. I’m on SSDI and work part-time. My income does not grow extra money for this. I applied for a few funding grants because my doctor(s) cannot help me. Their solution is to stop working and go on Medicaid. 🤔 Not a solution, in my opinion. So, after 4-5 months of calls, research, talking to my insurance company – which BTW were more helpful than anyone I have spoken with, I found a grant and was approved for $5,600 for copays. I can apply again and another batch of money will be approved for the year and the following year if funding is available. HA! got my foot in the door, F I N A L L Y!!!!

Today, I called the pharmacy where the medicine will come from, they tell me the copay money is for one brand not the generic. 😡 Therefore, they never filled or submitted a claim to anyone to find out if approved or not. 🤬🏃‍♀️🏃‍♂️🛵💨💨 The moron said the foundation will not pay for other types of meds. So, I pulled myself up an hour later from my meltdown and called the foundation which operates under the MS Foundation, the social worker said, no the pharmacist was WRONG and any medications associated with MS is covered.

I was too tired to call back and raise a lot of crap because I can. I will call tomorrow. Stay tuned, I have more. Bound and determined not to let my MS kick my butt. 💪🧡💪