How does a person with a chronic disease accept when someone says, “you must accept your disease to be able to live everyday” when I am living it, everyday. I’m in school, I’m working part-time, I’m still cooking, doing art, living on bare necessities with SSDI and PT income.

I have good days and bad days. I get out maybe once or twice every 2 weeks, woot! I rest on the bad days, but I still do what I need to do. Is this ok for someone to say? I don’t think so and I’m really bothered by that comment.

And… what about people who say to me “ALL” the damn time, I need to get away, I deserve to go out, I deserve a drink, its not fair others can go to Florida, I should go too. I sit in silence, most of the time tired or in pain, watching them complain or talk to me, thinking thoughts I cannot say on here.

In spite of all this, I still hope things change for the good, just forgive, love, and accept those who do not think about what they say does affect others especially who have a chronic disease.

Latest barrier is not being able to type my final project and research effectively, but as someone said, “you must accept having this disease to be happy”, will allow me the use of my mobility issues right now, interesting! Just thinking extremely aloud and personal.