I asked about finding a handicap accessible apartment with some pretty basic needs – walk in shower, washer/dryer hookup in apartment, dishwasher, central AC. Therapist said unfortunately not all HUD housing has those things you need, that I can afford. Unless a nurse comes out to the apartment, not much can be done . No suggestions were given or resources, just the standard links I’ve been given or already know or found out about. Waiting list is still up to 3 years, living with senior citizens  (which is not a bad thing, but it would be nice to live with people my age), living in an apartment facility for developmental disabled people was another recommendation. 

I’m disheartened. I’m back to square one looking for things I need. So, as an advocate, I need to roll up my sleeves, do some more deep research, and start kicking people’s asses so I can take care of me, as we know the MS is unpredictable every day. I need to figure out how to make sure I’m taken care of so when things do progress, I’m not stuck.

Another thought, maybe start a agency that actually provides solutions to the needs I just addressed, have workable and usable resources that actually are solutions that don’t take 3 years to do or get, because doctors, neurologists, insurance companies, and other healthcare professionals do not have the resources or real knowledge to provide because of insurance rules, Medicare and all the crap I’ve been working with. Don’t get me wrong, I’m grateful for what I was given but it needs to be more than what I’ve been trying to find and do for the last year. As my motto is, never ever let my MS kick my butt!!