The word is getting out there


It is exciting for me. This week I received an email from someone in Southfield who has MS and wants to join the group when she gets better. I think this is awesome. The more people that get involved, the information gets relayed out there. I received a videophone call from another person from out of state. Imagine that! The information that was posted in Deaf CAN made it all the way to Wisconsin. I am so excited! I asked her for permission to share her story on my blog.

The person I spoke with today is Suzi Scalette from Waukesah, WI.  I hope I spelled her last name right. She was diagnosed with MS in June of 2006. We talked for about an hour on the videophone. Suzi comes to Michigan frequently, so I told her about our MS support group meetings every month on the 2nd Saturday. She said she would try to attend. Her MS symptoms seem so common like all of ours. The numbness is the biggest thing. She said that her numbness happened in her face, something similar to mine back in 1991. She notices like shock or tingling bursts in her wrist and arm areas all the time. Like a throb. That’s a new one. I am not sure if that would be considered an electric shock like Myra and I experience.

She did say something that is similar to tingling, we all have that at some point. She said that a while ago, she experienced some problems with her left eye. It was almost like as if her left eye had become an lazy eye. But when she rested and thought positive about things, the eye went back to normal. Seems like some have problems with their eye. It will be interesting to compare stories if she comes to one of our meetings.

I shared about keeping a diary. It will help with the food , emotional and other things that the doctors always want to know but we can never remember when, where, how, why. The diary will help that. She liked that idea a lot.  I also told her about different food issues everyone had.

I am so happy the word is out there. Hoping that this will make such a huge difference.

1 thought on “The word is getting out there

  1. Multiple sclerosis (MS) is a disease in which the nerves of the central nervous system (brain and spinal cord) to degenerate. Myelin, which provides a covering or insulation for nerves, improves the conduction of impulses along the nerves and also is important for maintaining the health of the nerves. In multiple sclerosis, inflammation causes the myelin to disappear. Consequently, the electrical impulses that travel along the nerves decelerate, that is, become slower. In addition, the nerves themselves are damaged. As more and more nerves are affected, a person experiences a progressive interference with functions that are controlled by the nervous system `

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