Katie, Pam and Myra Saturday 12/13/08

My MS and Me Support Group went as planned on Saturday, December 13, 2008. I was so grateful to see everyone and felt so much better after we all met. It is so good to see a familiar face – Myra- and a new face finally Katie was able to join. I am so happy that she made it. I am hoping this is something that will continue from here on out. I think it is so important to have the support and to share what we go through.

We talked about many things. Katie wanted to know ho w long Myra has had her MS. Myra explained she feels that she has had it since 2000. She explained to Katie some of the things that she went through such as being scared to see the doctor. Then her symptoms got worse, she felt she had no choice but to see the doctor. Myra mentioned that she was not diagnosed right away, but almost a year later, the doctor finally saw the lesions on her scan. If I remember correctly, Katie said that her scans did not show up right away. I shared my story I thought it was strange, because I was diagnosed right away. There was no ands ifs or buts about it. The neurologist said I had MS. In a way I feel that at least I did not have to go through many tests and diagnoses to determine I had MS. It happened right away. I cannot imagine having going through the torment of wondering what is wrong with me because the doctor cannot figure anything out, why are these things happening. My diagnosis happened very quickly. But my long lonely ordeal with my MS seemed like forever until I started talking about it with someone else this year. Please know that I have talked about it with other people who did not have MS, but actually talking with someone who has it makes a huge difference.

We talked about food issues, still not sure if food does make a difference. Even if it does not make a difference, at least we are healthy. Myra explained to Katie about her nutrionist and what he does for her. I talked about these minerals and vitamins that I was taking and how I felt when I was taking them. A huge difference in how I felt every day. I told everyone that I will try them again and make sure that it is not a fluke before letting everyone else try it.

It was a good meeting, I hope that it will keep up.